Current:Home > Contact-usTikToker Sofia Hart Details Rare Heart Condition That's Left Her With No Pulse-InfoLens
TikToker Sofia Hart Details Rare Heart Condition That's Left Her With No Pulse
View Date:2024-12-23 14:21:13
Sofia Hart is bravely sharing her heart condition with the world.
The TikToker gave followers a look into how she lives while attached to a life-saving medical device called an LVAD—a left ventricular assist device—which keeps her heart pumping.
"Hello, I'm Sofia," the 30-year-old said in a July TikTok video. "I run off batteries, literally, and I don't have a pulse. I'm a human without a pulse, it's true. I'm not making it up."
Sofia added, "I am on a device—I guess you can just call it a life support device called an LVAD and it's called a left ventricular assistive device and it pumps to the left side of my heart."
Although the Massachusetts native noted that viewers wouldn't be able to see her scar, she did reflect on where it came from.
"I had open heart surgery at the end of November to implant the device that's inside of me that basically hugs my heart," Sofia continued before holding up the remote and batteries that are used to control the device. "It's on a continuous flow."
Explaining how she ended up needing open heart surgery, the social media star explained, "I have end-stage heart failure and I'm due for a heart transplant and I'm going to start sharing my story."
Over the past three months, Sofia has continued to document her daily life on TikTok and recently spoke to People about navigating her journey.
"That cord is pretty long, and I have mastered living in places where I can get around on that cord," she told the outlet in an interview published Oct. 24. "There's no turning back for me."
Reflecting back on when she realized something was wrong, Sofia recounted, "I started getting really achy and so fatigued. It's like a fatigue that you can't really describe. I wasn't tired in my brain, but my body was so tired."
And even though Sofia's twin sister Olivia was diagnosed with the same rare genetic mutation, she initially thought she was suffering from Lyme Disease. Olivia, who was working at the hospital Sofia was at, delivered the hard news.
"My sister said, ‘You don't have Lyme disease,'" she continued, "'and we really wish you did.'"
These days, Sofia is looking ahead to her heart transplant.
"I'm doing the work-up for it," she said to People. "I feel guilty having the option of choice to be finding my footing before jumping into transplant. I came out of the gates hot and then realized, well, the device is doing well, I'm doing well on the device, transplant is such a huge, huge, huge deal that I wanted to learn more about life, transplant, live with 'Janis'—the name I gave my LVAD—accept all that's changed and now I'm ready to go to transplant."
For the latest breaking news updates, click here to download the E! News AppveryGood! (876)
Related
- Jeep slashes 2025 Grand Cherokee prices
- Pilot error caused the fatal hot air balloon crash in New Mexico, NTSB finds. Drug use was a factor
- Lionel Messi, Inter Miami face Nashville SC in Leagues Cup final: How to stream
- Are forced-reset triggers illegal machine guns? ATF and gun rights advocates at odds in court fights
- Engines on 1.4 million Honda vehicles might fail, so US regulators open an investigation
- Patriots-Packers preseason game suspended after rookie Isaiah Bolden gets carted off
- Tribal courts across the country are expanding holistic alternatives to the criminal justice system
- Stumbling Yankees lose seventh straight game: 'We're sick animals in a lot of ways'
- Powell says Fed will likely cut rates cautiously given persistent inflation pressures
- Navy shipbuilders’ union approves 3-year labor pact at Bath Iron Works
Ranking
- Gigi Hadid and Bradley Cooper Prove They're Going Strong With Twinning Looks on NYC Date
- Well, It's Always Nice to Check Out These 20 Secrets About Enchanted
- Watch: Harry Kane has assist, goal for Bayern Munich in Bundesliga debut
- Dealer who sold fatal drugs to The Wire actor Michael K. Williams sentenced to 10 years in prison
- Indiana man is found guilty of murder in the 2017 killings of 2 teenage girls
- California’s big bloom aids seed collectors as climate change and wildfires threaten desert species
- Kansas judge allows ACLU to intervene in lawsuit over gender markers on driver’s licenses
- Firefighters curb blazes threatening 2 cities in western Canada but are ‘not out of the woods yet’
Recommendation
-
US Election Darkens the Door of COP29 as It Opens in Azerbaijan
-
How to watch ‘Ahsoka’ premiere: new release date, start time; see cast of 'Star Wars' show
-
Tribal courts across the country are expanding holistic alternatives to the criminal justice system
-
Fire tears through historic Block Island hotel off coast of Rhode Island
-
Is Veterans Day a federal holiday? Here's what to know for November 11
-
House fire kills 2 children in North Carolina, and a third is critically injured
-
Ohio State wrestler Sammy Sasso recovering after being shot near campus
-
Russia’s Luna-25 spacecraft suffers technical glitch in pre-landing maneuver